TIRRE Instrument Response Summary

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Last Updated: 26-02-2011

USE CASES LOCATIONS

CLINICAL + GENETIC

CLINICAL + DISEASE

Austria Croatia
France Finland
Italy France
Spain Germany
UK – Scotland Greece
  Ireland
  Norway
  Spain
  UK – England
  UK – Scotland
Number of contacts and valid responses
  CLINICAL DATA GENETIC DATA DISEASE DATA TOTAL
1st contact by email 110 117 89 316
1st contact by phone 83 19 16 118
Other phone contacts 53 25 17 95
Declined 1 1 0 2
Partial responses 39 14 18 71
Valid responses 29 12 15 60
On-line completion of the TIRRE questionnaire
ONLINE CLINICAL DATA GENETIC DATA DISEASE DATA EPR VENDOR TOTAL
Partial 21 11 13 0 51
Valid 12 9 10 0 35
Contacts with health ministries
Health ministry Total
Email 24
Telephone 18
Responses with info 7
Responses without info 5
   

PRIMARY CARE DATA

GENETIC DATABASES CANCER REGISTRIES USE CASES
LOCATIONS
Countries EU N n N n N n CLINICAL + GENETIC CLINICAL + DISEASE
Austria X 5 1 3 1 4 0 X  
Belgium X 10 2 3 0 3 0    
Bulgaria X 0 0 0 0 0 0    
Croatia   1 1 0 0 2 2   X X
Cyprus X 0 0 0 0 0 1    
Czech Republic X 0 0 0 0 0 2    
Denmark X 4 1 1 0 1 0    
Estonia X 3 0 0 1 1 0    
Finland X 1 1 1 0 1 1   X
France X 11 3 25 2 13 1 X X X
Germany X 9 4 18 0 4 1   X
Greece X 5 1 1 0 1 1   X
Hungary X 2 0 0 0 0 0    
Iceland   2 0 5 1 2 0    
Ireland X 4 1 1 0 1 1   X
Italy X 15 3 27 1 19 0 X  
Latvia X 0 0 1 1 1 0    
Lithuania X 1 0 1 1 1 0    
Luxembourg X 1 0 0 0 0 0    
Malta X 1 1 3 0 2 0    
Norway   5 1 2 0 2 1 X
Poland X 0 0 1 0 4 1    
Portugal X 6 0 2 1 3 1    
Romania X 7 0 2 0 1 0    
Russia   2 0 0 0 1 0    
Slovakia X 1 1 0 0 1 0    
Slovenia X 0 0 0 0 1 0    
Spain X 17 1 11 1 14 2 X X X
Sweden X 8 1 1 0 1 0    
Switzerland   1 1 2 1 9 0    
The Netherlands X 24 2 6 0 4 0    
Turkey   2 0 0 0 0 0    
UK-England X 11 3 3 0 12 2   X X
UK-Northern Ireland X 0 0 0 0 1 0    
UK-Scotland X 6 1 2 1 1 1 X X
UK-Wales X 0 0 0 0 0 0    
European *   2 0 9 1 1 1    
TOTAL   167 30 131 13 112 19 6 13

• Database that holds data from more than one European country

• 4 of the responses since the closing of TIRRE at the end of February gave no information on country and classification and aren’t included in the above table

N = number contacted
n = valid responses in TIRRE

Total contacts made: 433
Total valid responses: 60